Special Needs Trusts: Protecting a Loved One's Future
Parents and family members caring for a loved one with a disability face a unique estate planning challenge: how do you leave them an inheritance without jeopardizing the government benefits they rely on? A Special Needs Trust (also called a Supplemental Needs Trust) is often the answer.
The Problem It Solves
Many individuals with disabilities depend on means-tested government benefits like Supplemental Security Income (SSI) and Medicaid. These programs typically limit a recipient's countable assets to a very small amount — often as little as $2,000. An inheritance, a personal injury settlement, or even a well-intentioned gift can push someone over that limit and result in a loss of benefits.
A properly drafted Special Needs Trust allows assets to be held for a person's benefit without counting against those resource limits, because the beneficiary doesn't own or control the trust assets directly — a trustee does.
Types of Special Needs Trusts
First-Party (Self-Settled) Trusts Funded with the beneficiary's own assets, often from a personal injury settlement or inheritance received outright before planning was in place. Florida and federal law require these trusts to include a Medicaid payback provision, meaning any remaining funds at the beneficiary's death first reimburse the state for benefits paid.
Third-Party Trusts Funded with assets belonging to someone else — typically a parent or grandparent — for the benefit of the individual with a disability. These trusts do not require a Medicaid payback provision, making them a preferred tool when parents are planning ahead as part of their own estate plan.
Pooled Trusts Managed by a nonprofit organization that pools resources from many beneficiaries for investment purposes while maintaining separate accounts for each individual. These can be a practical option when a family doesn't have a trusted individual to serve as trustee.
What the Trust Can (and Can't) Pay For
Special Needs Trust funds are meant to supplement, not replace, government benefits. Trustees can generally use trust assets for things like:
- Therapies, medical equipment, and services not covered by Medicaid
- Education, recreation, and travel
- A caregiver or companion
- Home modifications and certain personal items
Direct cash distributions or payments for basic food and shelter can reduce SSI benefits, so careful trustee administration is essential.
Why This Should Be Part of a Broader Plan
A Special Needs Trust rarely stands alone. It typically works alongside a will, a durable power of attorney, and often a guardian advocate designation, so that your loved one's care, finances, and legal decision-making are all addressed together. Coordinating these documents — and naming a trustee who understands the rules — is where experienced guidance matters most.
Let's Talk About Your Family's Plan
Every family's situation is different, and the right trust structure depends on the source of the funds, the beneficiary's needs, and your long-term goals. Attorney Thomas Saxey works with families across the Emerald Coast to build estate plans that protect the people who matter most. Call Saxey Law PLLC at (850) 684-4432 or email thomas@saxeylaw.com to start the conversation.
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